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Consensus Study Report
Human genetics and genomics in South Africa: ethical, legal and social implications
Year of Publication : 2018
Language : en
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Abstract (English) : This study aims to address the ethical, legal and social implications (ELSI) of genetics and genomics work, as it relates to research, health service provision and forensic applications (medical and legal) in South Africa. The study was undertaken by a 13-member panel appointed by the Academy of Science of South Africa (ASSAf).
The deliberations in this report are centred on the broad philosophical approach of Ubuntu, a philosophical notion that refers to the essence or quality of being human. The report describes the benefits to be derived from genetic and genomics work, the need for boundaries to be clearly defined and adherence monitored to ensure that benefits are shared by all and that no harm is done. The report is divided into three thematic areas: Building Relationships, Respect for Persons and Good Stewardship. Each section is followed by recommendations which are ethically and legally sound, culturally appropriate, feasible, enforceable and sustainable, given the resources within the country, and balanced against competing national priorities.
Publisher : Academy of Science of South Africa (ASSAf) & Department of Science and Technology (DST)
Citation : Academy of Science of South Africa (ASSAf) and Department of Science and Technology (DST). (2018). Human genetics and genomics in South Africa: ethical, legal and social implications. https://doi.org/10.17159/assaf.2018/0033
Sponsorship : Department of Science and Technology (DST), South Africa
DOI : 10.17159/assaf.2018/0033
ISBN : 9780639941080 | 9780639941097
Peer Review Status : Peer-Reviewed
ASSAf Strategic Outcomes : Independent, authoritative and influential Scientific Advice | Mobilising knowledge
ASSAf Priority Areas : Service to Society
ASSAf Purpose : Science for Policy
Sustainable Development Goals (SDG) : SDG 03 – Good Health and Well-being | SDG 09 – Industry, Innovation and Infrastructure | SDG 10 – Reduced Inequalities | SDG 16 – Peace, Justice and Strong Institutions
DSTI Indicators : Indicator 1: Disseminated publications and journal articles
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