Human Genetics and Genomics in South Africa: Ethical, Legal and Social Implications

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assaf.peer-review.statusPeer-Reviewed
dc.contributor.authorAcademy of Science of South Africa (ASSAf)
dc.contributor.authorDepartment of Science and Technology (DST)
dc.date.accessioned2018-12-04T10:57:11Z
dc.date.available2018-12-04T10:57:11Z
dc.date.issued2018
dc.descriptionPlease cite as: Academy of Science of South Africa (ASSAf) and Department of Science and Technology (DST) (2018) Human Genetics and Genomics in South Africa: Ethical, Legal and Social Implications. Available at: http://dx.doi.org/10.17159/assaf.2018/0033en_ZA
dc.description.abstractThis study aims to address the ethical, legal and social implications (ELSI) of genetics and genomics work, as it relates to research, health service provision and forensic applications (medical and legal) in South Africa. The study was undertaken by a 13-member panel appointed by the Academy of Science of South Africa (ASSAf). The deliberations in this report are centred on the broad philosophical approach of Ubuntu, a philosophical notion that refers to the essence or quality of being human. The report describes the benefits to be derived from genetic and genomics work, the need for boundaries to be clearly defined and adherence monitored to ensure that benefits are shared by all and that no harm is done. The report is divided into three thematic areas: Building Relationships, Respect for Persons and Good Stewardship. Each section is followed by recommendations which are ethically and legally sound, culturally appropriate, feasible, enforceable and sustainable, given the resources within the country, and balanced against competing national priorities.en_ZA
dc.description.sponsorshipDepartment of Science and Technology (DST), South Africaen_ZA
dc.identifier.citationAcademy of Science of South Africa (ASSAf) and Department of Science and Technology (DST) (2018) Human Genetics and Genomics in South Africa: Ethical, Legal and Social Implications. Available at: http://dx.doi.org/10.17159/assaf.2018/0033en_ZA
dc.identifier.doihttp://dx.doi.org/10.17159/assaf.2018/0033
dc.identifier.isbn9780639941080
dc.identifier.isbn9780639941097
dc.identifier.urihttp://hdl.handle.net/20.500.11911/106
dc.language.isoenen_ZA
dc.publisherAcademy of Science of South Africa (ASSAf) & Department of Science and Technology (DST)en_ZA
dc.subjectLegalen_ZA
dc.subjectSocialen_ZA
dc.subjectForensicsen_ZA
dc.subjectResearchen_ZA
dc.subjectDNAen_ZA
dc.subjectUbuntuen_ZA
dc.subjectSustainable Development Goals (SDGs)en_ZA
dc.subjectSDG 3en_ZA
dc.subjectSDG 9en_ZA
dc.subjectSDG 10en_ZA
dc.subjectSDG 16en_ZA
dc.titleHuman Genetics and Genomics in South Africa: Ethical, Legal and Social Implicationsen_ZA
dc.typeConsensus Study Reporten_ZA
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